The open screen door lets the cool morning air into the kitchen. Water is heating in a pot that’s on a circle plugged into the wall sitting on the counter. I open my computer and do a New York Times’ crossword puzzle as I wait for the boiling point. When I hear the circle turn off from a click on the top of the pot, I grab a mug, pour the water, add a tea bag, and return to the crossword. The more I do crossword puzzles, the easier they become. My double vision comes and goes depending on what angle my eyes are facing. I grab a sweater to warm the goosebumps on my arm. My day usually begins this way. Some details may shift just slightly but it’s more or less like this.
There’s a split in my reality
every morning and night.
When what I see doubles
into this hallucination like state,
my brain is confused. My eyes
don’t work together for longer than
twelve hours a day. Individually,
they’re fine. Left is down
and right is up. If I cover one,
my vision is single and up
or single and down.
Whatever I’m looking at
will move to a different space
without me moving my head.
I try my best to fight it until
my eyes are no longer cooperating
and I’m forced to go to bed.
When I started my blog a year ago, I didn’t expect to be dealing with the issues I have now. Last year, I was just diagnosed with Hashimoto’s and finishing up my degree in English. These last few months have been defined by my health, particularly my thyroid eye disease. It’s sad but true. Eyes are a huge part of everyone’s life and when they’re sick, it takes a tremendous toll on how one might move about their life.
Last week, I went on a cruise with my dad’s side of the family. While it was great to see other places and learn about different cultures, it’s also difficult to be in the Caribbean when I’m extremely light sensitive. I started the trip with some daily headaches and no real eye problems. But by mid week, I was having a lot of double vision and my eyes were finished with the sun. Trading headaches for burning eyes and double vision wasn’t ideal, to say the least.
Before this last week, I had a few weeks of minimal eye problems. Thyroid eye disease has its ups and downs, some times are better than others. The months before my brief plateau were brutal. A lot of irritation, swelling, and double vision. One thing after another happened. The weeks prior to the cruise, my eyes weren’t my main worry. I certainly had concerns about my eyes going into the trip and how they could react to travel. But they weren’t entirely on the forefront until they began their downward spiral once more.
What these last few months have taught me is to expect the worst and hope for the best. It’s a weird way to live but it’s better to be mentally prepared for something to go wrong so that when it does, I can tread through rocky waters as calmly as possible. And when something does go wrong, I try to find the good in those situations. Things could be worse than they are. At least I can see out of both eyes. This is a difficult moment but it won’t least forever.
August 12th, 2018
I love when I’m in a place and my phone isn’t on the forefront of my mind.
This is so important for someone like me who seemingly can’t detach from the lure of always needing to be updated on who posted what and when on Instagram.
It’s an addiction I’ve been trying to control for a while. Habits that I’ve blissfully unaware of harder to acknowledge than one would assume.
Denial and ignorance take over my mind for a long time until my awareness over my routine becomes too strong to the time that falls out the window due to too much time scrolling through stranger’s photos on the app that’s different to detach from.
It’s only when I’m on my own and away from good cell coverage that I can step back and see what life is like when it doesn’t revolve around feeling the need to know who, what, when, and speculate on why.
Although, I had this feeling when walking through New York. Being out and about in the city, I barely thought about what could be happening on the addicting app. It was another view into a life where technology wasn’t sucking up the time in my day.
My goal is to get to a place where I don’t feel the need to check Instagram too many times a day when I’m in good cell coverage or have WiFi.
For now, deleting the app will have to do.
(Some of this is rambling, some of this is incoherent. I’m tired and excited to spend the day not on my phone.)