"We will just wait," my doctor reassures me at the end of another long visit.
The limited resources I have to aid my symptoms
cause more damage than improvement.
So I accept what I cannot change
and wait for change to occur.
I just got my vision back after months of fuzziness,
oh what it's like to see clearly, such a wonderful thing.
With new glasses, my vision is close to what it was
before it drifted away without saying goodbye.
I accept this knowing my vision will likely shift
once again within the next few months.
As I wait for time to go by, I thank modern medicine
for relieving me from my personal hell for the moment.
These obstacles I face have no solution or cure,
the only thing I have on my side is time.
In time, this disease will pass thru my body
and one day it will become a memory.
There's no telling when that will happen,
every person who has this is completely different.
One year, two years, will eventually
blend together in my depths of my mind.
Spring has arrived along with the remnants of winter.
Snow one day, seventy degrees the next.
You never know what you're going to get.
The grass is greener as bees fly
and house cats beg to come back inside.
Days are longer, thoughts are shorter.
Everything looks different upon reflection.
Awareness changes thoughts and perspective,
for once I can look at my interactions without judgment.
The keys on a new keyboard are the best present I could ask for.
Smooth and shiny while working together
without pause or hesitation of a key falling off.
My dry eyes make things coming closer appear
like the wizards from Harry Potter, out of focus
and then all of a sudden clear as crystal.
I’m in a familiar place in uncharted waters
People are arriving but I don’t know why.
I park the car I’m driving and look to see if I’m in the space.
Moments later as I walk away, more cars appear,
filling the empty spaces around me.
I walk into a room backstage, someplace I do not know.
A man walks up to me and it’s clear I know him.
I’m not who I know myself to be. I’m someone else.
This is true by how I walk and hold myself up.
I watch people walk in and out of random doors.
I hear people speak but I can’t understand words.
I pace back and forth on a red carpet.
I’m impatiently waiting, mindlessly anticipating
walking thru a red curtain.
For what? I will never know.
I wake up in the morning and do not feel like myself.
My body aches in unfamiliar ways.
The joints in my hands crack,
my right thumb somehow feels unnerved.
The muscles in my back and neck haven’t
been the same since experiencing multiple panic attacks.
I look in the mirror and do not recognize myself.
My cheeks are puffy, resembling a chipmunk,
reminding me of when I had my jaw surgery.
My eyes are strange, for my top lids are pulled back,
giving me an unwanted stare I don’t realize I have.
The puffy pockets underneath my eyes indicate
swelling that somewhat subsides by the time I say goodnight.
I look out onto the day and everything has changed.
My vision has been on the decline
for the last two months and has suddenly
taken a nose dive into the great unknown.
I can’t see much beyond twelve feet,
it’s like looking into a fish bowl,
everything is fuzzy or blurry or double.
I see double if I look up and tilt my chin down.
My reality shifts into two, pulling apart from one
another like something is breaking from being
overstretched, people often look like their souls
are leaping out of their bodies like fading ghosts.
This has been occurring since October, it seems like
a lifetime ago and yet it’s still jarring every time
I watch something transform into perspectives
no one else can see. People often have four
eyes, which is always the most alarming.
I haven’t felt like myself in a long while.
This temporary normal that’s constantly shifting
will never feel normal. I woke one morning
and everything had changed without a warning.
I’m still process everything that has happened,
it’s overwhelming and terrifying to have no
control over what is going on with your own body.
I just want to see again. More than anything,
I want to have my vision back.
I want to be able to see things far away
without fuzziness or double preventing me
from appreciating the beauty around me.
I want to walk around without feeling
my depth perception being off.
I want to be less sensitive to bright lights.
I want to look up with my eyes
instead of craning my poor neck.
I want to not feel my eyes focusing.
I want to no longer feel eye strain.
I want to no longer feel like my eyes are buzzing.
I didn’t realize how much I took my eyes
for granted until things unexpectedly shifted.
Though my viewpoint tends to focus on
the negative since they’re more overwhelming,
there are a few shining spots in all this chaos.
My eyes are not budging out of their sockets.
Though my eyes are sitting in different places,
it can go unnoticed if you don’t know it.
They may look a little different and certainly I can tell,
it’s not my biggest problem by any means.
I have a prism on one of my lens that corrects
the double vision when I look forward.
I don’t know what I would do without it.
The support I have from my family is unconditional,
they continue to help me through this process
as we figure out the best avenue to take
to relieve the discomfort so I can move forward.
The mind is at war with itself.
Tugging back and forth
between what is rational
and what is emotional.
Foreign emotions ride the wave
of overwhelming intensity,
crashing into reasoning
before the mind can
comprehend what is happening.
Thoughts are left swirling
in madness as the heart shutters
like it’s surrounded by blowing snow
in the middle of a blackout blizzard.
The rational part tries to gain control,
but is met with the feeling
of not breathing while swimming.
Eventually, rationality takes the reigns,
stopping the pain.
Two people share a connection
when their eyes meet.
Everyone who is watching
wonder what could be going on.
Is this fate or planned?
Are what we seeing an illusion
or a true moment?
What is authentic
and what is for the cameras?
People who don't understand acting
can't comprehend what they're seeing
as anything less than true love.
Coincidences are the universe
trying to tell humans the truth
through simple observations.
Keep your eyes open.
I'm driving down familiar streets hours after the sun has set.
My eyes cause the lights to shift beyond the darkness.
Streetlights drop below the actual light and hover,
falling in mid-air. The lights at the intersection
have the same motion, falling into two without
dropping to the road below. The brake lights on the car
in front of me look like they're melting off onto the bumper.
The headlights of the cars heading in the other direction
appear to be reflecting off a mirror on the dry road.
The more lights I see, the more my reality feels
like a weird dream out of Dr. Seuss' mind.
The lights unable to stay whole in my eyes
cause an illusion to occur that only I'm seeing.
An uneasy feeling arises in my stomach.
I realize if I focus on nothing in particular,
the lights calm a bit as they continue to hover in the night.